Category Archives: Advocacy

StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

Apply for the PACH Cardiometabolic Leadership Academy

StopAfib.org is a member of the Partnership to Advance Cardiovascular Health (PACH) coalition. PACH is conducting a patient advocacy training program called the Cardiometabolic Leadership Academy, or CLA, for advocates across various cardiometabolic diseases, including afib. Patients will be taught how to raise their voices to advocate for open access to treatments.   The CLA is …

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StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

StopAfib.org and Leading Experts Issue a Call to Action

StopAfib.org, joined by a task force of experts representing the nation’s leading cardiology and cardiothoracic surgery organizations, is calling for renewed efforts to address health disparities and improve care for people living with atrial fibrillation. Recognizing the need for more equitable care, StopAfib.org convened the task force to develop a new call-to-action report, “Addressing Health …

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Patient-Funded Research: GENIALITY Study: GGA for Afib Prevention

A favorite presenter at the Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conferences for the past three years has been Professor Bianca Brundel, PhD, from the physiology department at the Amsterdam University Medical Center in The Netherlands. Dr. Brundel shared with us information on testing how toxic triggers drive afib progression and how …

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StopAfib.org Applauds New Atrial Fibrillation Guidelines to Improve Patient Care

StopAfib.org applauds the American College of Cardiology (ACC), American Heart Association (AHA), American College of Clinical Pharmacy (ACCP), and Heart Rhythm Society (HRS) for the newly released 2023 ACC/AHA/ACCP/HRS Guideline for the Diagnosis and Management of Atrial Fibrillation: A Report of the American College of Cardiology/American Heart Association Joint Committee on Clinical Practice Guidelines. Learn …

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StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

Results of AZALEA and ARTESiA Trials of Afib Stroke Prevention Presented at AHA

This month, at the American Heart Association Scientific Sessions held in Philadelphia, several important Afib Late-Breaking Clinical Trials were presented that I want to share with you. These include AZALEA, ARTESiA, and NOAH-AFNET 6. We have posted news stories about them, which you can access here: Afib News from the American Heart Association Scientific Sessions …

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StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

Take This Survey to Share Your Experiences with Afib Medications for Medicare

Medicare will negotiate the prices of two afib drugs and is holding Virtual Listening Sessions. They seek to understand the patient's experience with these medications and their alternatives. StopAfib.org has applied to speak on behalf of the afib patient community. We are launching a survey to inform our comments. We would like to understand your …

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StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

Afib Patient Advocates Needed!

StopAfib.org is seeking afib patients interested in participating in an advocacy training program. The training program will help prepare individuals to share patient perspectives with various audiences and participate in advocacy activities. The training will take place virtually and consist of two half-day sessions, January 19-20, 2023. Following that, if you would like to refine …

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Support Patient-Driven Afib Research for Giving Tuesday

Giving Tuesday is the time of year when people around the world support what matters most to them. That usually means giving donations to nonprofit organizations such as ours. But, we are not asking for donations for us. Instead, we are asking for your help in supporting afib research—patient-initiated and patient-driven afib research. Let me …

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