Medicare will negotiate the prices of two afib drugs and is holding Virtual Listening Sessions. They seek to understand the patient's experience with these medications and their alternatives. StopAfib.org has applied to speak on behalf of the afib patient community. We are launching a survey to inform our comments. We would like to understand your …
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For National Atrial Fibrillation Awareness Month, I'm excited to moderate two free afib webinars being hosted by Medtronic. The September 26 webinar features Dr. Devi Nair, Director, Cardiac Electrophysiology & Research, St. Bernards Medical Center, White River Medical Center in Jonesboro, AR. The September 30 webinar features Dr. Nicholas Skipitaris, Western Regional Director, Cardiac Electrophysiology, …
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Do you plan to have an afib catheter ablation? By joining the VIBRANT-AF Study before your catheter ablation, you can contribute your data to an effectiveness study that will improve the care of afib patients having catheter ablations. This study is being done at the University of California at San Francisco by Dr. Greg Marcus, …
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If you’re new to our community, please check out these tools when deciding whether to take blood thinners. Even if you have used them previously, things may have changed about your afib, so it may be worth looking at them again. These tools come from the ENHANCE-AF (Engaging Patients to Help Achieve Increased Patient Choice …
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We are SO excited to share with you that at our 10th anniversary Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference (August 4–6) we will have an incredibly special event on Saturday evening with a celebrity guest! When you attend the conference in person or via livestream, you’ll have the chance to hear this …
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Patient-Relevant Bleeding Events Among Patients Taking Anticoagulant Medication was recently presented at the International Society on Thrombosis and Haemostasis’ (ISTH) annual meeting in Montreal. Anthos Therapeutics, in collaboration with StopAfib.org and the National Blood Clot Alliance (NBCA), presented new data from a survey of afib and VTE patients about the impact of so-called “minor bleeding” on …
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Some new tools are available for your use in deciding whether to take blood thinners. These tools come from the ENHANCE-AF (Engaging Patients to Help Achieve Increased Patient Choice and Engagement for AF Stroke Prevention) Trial that our founder helped with. The American Heart Association funded the trial, the principal investigators were at Stanford University, …
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StopAfib.org is seeking afib patients interested in participating in an advocacy training program. The training program will help prepare individuals to share patient perspectives with various audiences and participate in advocacy activities. The training will take place virtually and consist of two half-day sessions, January 19-20, 2023. Following that, if you would like to refine …
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Since today is Giving Tuesday, we’re asking for your help. Giving Tuesday is the time of year when people around the world support what matters most to them. We’re not asking for donations for us but instead are asking for your support for patient-driven afib research. At the past two Get in Rhythm. Stay in …
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Giving Tuesday is the time of year when people around the world support what matters most to them. That usually means giving donations to nonprofit organizations such as ours. But, we are not asking for donations for us. Instead, we are asking for your help in supporting afib research—patient-initiated and patient-driven afib research. Let me …
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